Last thursday Joyce received another injection. Her response to it seems to be good. We will go back July 9th and see what a 3 week cycle does for Joyce. I still see the improvements gained in January. Joyce has different ditties or sayings she says than before we started but she also will occassionally pick up on the TV or a conversation and repeat a piece of it for some time frame.
She is still eating well and likes to walk up and down the driveway if I let her just go. My problem is that she wont close the back door when she goes in and out, and as hot as it is. that makes the a/c run more. I am sure some of you are horrified that I let her go freely but to date she hasn't ever taken off, even when we are shopping she will eventually find me or the car. I wish I knew what she was thinking when she walks around but in the store if she gets out of sight then sees me later she will walk to where I am.
Unless they develop a new medicine I have resigned myself to the fact that her aphasia is not going to go away. There are times she will respond yes or no to a question but she just doesn't voice her inner thoughts. As far as I can see though she is maintaining and not regressing. Holding the current level is a good thing because it buys us time. Five years ago this treatment wasn't available, five years from now there may be a cure. My hope is that she is still well enough to benefit from it.
Thanks to all of you following this blog, you prayers and hopes are so very much appreciated.
PAL
Sunday, June 21, 2009
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Thank you for your encouraging stories!
ReplyDeleteFelicia
I would be worried about the effect of the heat on HER.
ReplyDeleteAnd are you waiting for her to disappear before you quit letting her go?
I don't think you are thinking this through. There is danger to her from both of the above. Altzheimers people disappear all the time for days.
I do not have your fears. I am with her everyday and if youwere I dont think you would feel the way you do. I want her to be able to live as much as possible. If she likes to walk and gets a little hot I will cool her off. There may come a time that I won't be able to let her meander but I feel it is good for her soul to do so now.
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