We have all heard the the obvious statements about goals and directions. "you can't see the forest for the trees" suggesting that you are looking too microscopically at a situation or "when you are up to your ass in alligators its difficult to remember that your objective was to drain the swamp" suggesting that you can get overloaded and forget what you are trying to do. Both of these apply to me at different times, then something will come along and the light comes on. I have told you before that the one ingredient needed is patience in dealing with this disease. God knows I could use a ton more. My middle daughter Missy has been moving from Dothan, Alabama to San Antonio, Texas. In late March she made a stopover and again in late May. The significance of this is that in late May she told me that Joyce seemed better in March than when she left California, which was early in the treatment cycle, and better in May that March. It is very hard for me to see the changes that Missy's time lapse allows her to see. Those trees just get in my way.
We have shifted to a 2 1/2 week cycle on injections, after the next one we will try 3 weeks. In the short term I see improvement and hopefully it will continue. It also helps financially as well not that money was the reason for the change. I just didnt see her improving with the weekly shots. We got an injection yesterday and she seems to be doing better than she did right after past injections. She still cannot express her thoughts so I have to read other signs. She has been much calmer this time than after previous injections.
I wish the best for all those facing the same problem. I hope in some way this narrative can help you. Thank you all for your support.
PAL
Tuesday, June 2, 2009
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