Everytime a change is made there is always the worry that it is the wrong move. With this disease there is no other way to be but keep trying different ways and meds. Last Thursday was the first injection on the 3 week cycle. To be truthful after 2 weeks I was seriously thinking that we had stretched the time out too far.
Then out of the blue, Joyce mellowed out and responded in a way that just gives you hope. She became much calmer starting Sunday the 5th and remained so all the way to and through the injection visit last Thursday. Even the Doc noticed and commented on how relaxed she was. In addition, she began responding to questions, asked of her, in a more appropriate manner, albeit, just yes and no responses, indicating at least a slightly improved interactive communication. One thing is certain, you have to have patience and give trials time to work before you draw conclusions. For now the 3 week cycle will stay in place and we will observe what develops.
In my younger life I had sufficient experience with dirty diapers. Of course those had tabs and i could physically hold legs etc. to manage removal without making too big a mess. Believe me there is a big problem trying to extricate a messy "depends" from an adult with shoes and shorts etc. Then all of a sudden it hit me . It was so simple, I just keep a large pair of sissors in the bathroom and cut the legs from the hip down on the outside. Presto minimum mess. Hope I didn't ruin your last meal but be sure to file this away in case you ever have to be a caregiver for someone with "depends"'
I want to thank all of you wonderful people who continue to send encouragement and who lift my spirits. With all the troubles in the world, it so refreshing to know first hand how big the human heart can be. God bless you all.
PAL
Saturday, July 11, 2009
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My name is Linda Ingram. My husband was diagnosed with AD about 2 years ago. I have looked everywhere for treatments with little success. I have been in touch with Dr. Tobinick about the Enbrel treatments. We decided that the trip back and forth to L.A. wouldn't work for us. I have been looking frantically for someone closer to us who gives the treatments. I saw on your blog that you have had treatments done in Lake Charles.
ReplyDeleteCan you give me the name of the doctor and tell me how to get in touch?
Any help that you can give me would be wonderful!!
Thank you,
Linda Ingram icc1@bellsouth.net